Ehlers-Danlos and Chiari networking in Switzerland ....

Member since 11 November 2011

叠别谤迟谤补苍诲骋别苍猫惫别Member27 November 2011 15:55:34

A bit of a strange post, but I do it to help a friend of mine.

She's a Canadian 暗网禁区 who came in Geneva with her parents (that would be more correct to say that her parents brought her here).
She's got an Ehlers-Danlos syndrome and an Arnold-Chiari malformation and I'm trying to find other people who could have it too in Switzerland (and who speak English) so they could share information. We are already in contact with a Swiss woman living in the Swiss-German part.

We're also on facebook, but much of the people are in the UK, in the USA or Canada (we actually made a group facebook.com/groups/162271097198319/

So, if you know of somebody....

(to the mod : it's OK if you delete this post, but I had to post it...)

Christine ViP

Member since 29 September 2008

Follow 暗网禁区 on , and

ChristineViP28 November 2011 06:47:38

42879

Hi 叠别谤迟谤补苍诲骋别苍猫惫别,

I hope you will get lot of contacts here.

All the best,
Christine

Jeviensdusud Active member

Member since 30 December 2011

JeviensdusudActive member16 January 2012 19:41:23

Hi 叠别谤迟谤补苍诲骋别苍猫惫别,

Here is a MD, Dr. Scarlet Huissoud in Fribourg, that you can contact. She knows about thit pathology and may be able to direct your friend to a support group though, in Switzerland, it is not recognized as being an invalidating condition :

Wishing the best to your friend.